Rosa's Blog

February 2011

I began last week with an appointment to see my cardiac consultant in the Paediatric Outpatients. It was my last visit there and final part of my transition stage! In a way, I was happy and sad. Happy, because I was the oldest there and I looked so out of place but sad, because I knew everyone there. I had an ECG and the doctor said I was all okay and he then discharged me.

The week ended on another hospital appointment in Neurology. I had been referred to the hospital by my GP to see a specialist. I keep on having frequent migraine-type headaches. When they come on, the pain is most excruciating and visually impairs me on the left side of my head. I saw the doctor; she went through a few questions with me and tested my reflexes.

I was then sent for a CT scan. I was in and out of the CT scan in no time; however I ended up waiting a whole 2 hours for my results! When the results came it was good news and bad news for me.

Good news, they couldn’t see anything wrong with me.

Bad news, they don’t know what’s causing the headaches.

I keep on getting the headaches and because of the nature of my work it sometimes stops me from using the computer it can be so bad. I hope I find out what it is!

Anyway, that’s enough of my ranting for now! I shall update you again soon.

March 2011

Just a quick update..

The weathers looking
b-e-a-utiful!

I love going out for a drive in the bright sunshine on Saturday and Sunday mornings! I’m really looking forward to taking my test and hopefully passing. At the moment I’m insured to drive my parent’s car on provisional.

Work is going well. I’ve almost completed my NVQ, but I’m really not looking forward to job hunting!

I have been a bit ill recently though, I’m not too sure what it is. I think it’s a mixture of a cold and allergic reaction?

I have seen a general medicine doctor at the hospital about my allergic reactions, I also had tests done and they showed that I was pretty much allergic to everything they tested for! It seems to go from bad to worse as I seem to be showing lactose intolerance now as well, which is a shame because I LOVE milk! I used to be allergic to milk as a baby/child, but I seemed to grow out of it – and now it’s come back with a vengeance!

I’m hoping that I’ll be better soon though as I have all next week off on Annual Leave. I’m not quite sure what I’m going to do yet, probably lots of shopping? ;-)

November 2010

Hey Guys and Girls,
Sorry for the late blog but, as you can see, I've been busy!

So I ended the summer with my GCSE results (which i'm pretty pleased about) and a few hospital appointments. I had a 24 hour ECG tape followed up by an  exercise test and a follow up appointment.
I had the 24 hour tape and as usual, it showed nothing. The exercise test wasn’t too bad - however, I’m not sure I could get used to running with nothing but a hospital gown and a pair of trainers on! At the follow up appointment I ended up spending the whole day there, just waiting to be seen! We discussed all the results with the doctor - and he said everything is fine and he’ll see me in about 6 months time…


About a week later I started my new job, working for the local council. Sweeeeeeet. It’s not too bad, 9 till 5 job with the pleasure of doing a NVQ at the same time. But now I have a job, it seems that I just don’t have time for anything!

I can’t believe it’s almost the end of the month, it’s gone so fast! I can’t wait till next week; I’m going to Devon for the week with work for outdoor pursuits, it will be a great opportunity to meet all the other apprentices and learn new skills. There’ll also be plenty of photos!

I even got braces this month (bright pink!) and I got my provisional! I can’t wait to start driving, better watch out for me on the roads!

So I’m glad to say it’s been a busy, tiring but interesting month. Roll on next month and the rest to come!

September 2010

Hi, I’m Rosa. I have just left secondary school. I studied: English, Mathss, Biology, Chemistry, Physics, ICT, History, French and Sociology.

I have Long QT Syndrome, which is a quite rare inherited heart condition where the electrical charging and discharging of the heartbeat takes longer than normal.  This can make my heart at risk of  getting a very fast abnormal heart rhythm that can cause sudden loss of consciousness and even sudden death.

I am going through the transitional period at the moment- where I am moving from paediatric clinic to adult clinic. I do not have a hospital to go to and I’m stuck in limbo!

So, I’ve decided to write this Blog to not only tell people what the transitional period is like, but to tell people what day-to-day life is like living with a heart condition.