I began last week with an appointment to see my cardiac
consultant in the Paediatric Outpatients. It was my last visit
there and final part of my transition stage! In a way, I was happy
and sad. Happy, because I was the oldest there and I looked so out
of place but sad, because I knew everyone there. I had an ECG and
the doctor said I was all okay and he then discharged me.
The week ended on another hospital appointment in Neurology. I
had been referred to the hospital by my GP to see a specialist. I
keep on having frequent migraine-type headaches. When they come on,
the pain is most excruciating and visually impairs me on the left
side of my head. I saw the doctor; she went through a few questions
with me and tested my reflexes.
I was then sent for a CT scan. I was in and out of the CT scan
in no time; however I ended up waiting a whole 2 hours for my
results! When the results came it was good news and bad news for
Good news, they couldn’t see anything wrong
Bad news, they don’t know what’s causing the
I keep on getting the headaches and because of the nature of my
work it sometimes stops me from using the computer it can be so
bad. I hope I find out what it is!
Anyway, that’s enough of my ranting for now! I shall update you
Just a quick update..
The weathers looking
I love going out for a drive in the bright sunshine on Saturday and
Sunday mornings! I’m really looking forward to taking my test and
hopefully passing. At the moment I’m insured to drive my parent’s
car on provisional.
Work is going well. I’ve almost completed my NVQ, but I’m really
not looking forward to job hunting!
I have been a bit ill recently though, I’m not too sure what it
is. I think it’s a mixture of a cold and allergic reaction?
I have seen a general medicine doctor at the hospital about my
allergic reactions, I also had tests done and they showed that I
was pretty much allergic to everything they tested for! It seems to
go from bad to worse as I seem to be showing lactose intolerance
now as well, which is a shame because I LOVE milk! I used to be
allergic to milk as a baby/child, but I seemed to grow out of it –
and now it’s come back with a vengeance!
I’m hoping that I’ll be better soon though as I have all next
week off on Annual Leave. I’m not quite sure what I’m going to do
yet, probably lots of shopping? ;-)
Hey Guys and Girls,
Sorry for the late blog but, as you can see, I've been
So I ended the summer with my GCSE
results (which i'm pretty pleased about) and a few hospital
appointments. I had a 24 hour ECG tape followed up by an
exercise test and a follow up appointment.
I had the 24 hour tape and as usual, it showed nothing. The
exercise test wasn’t too bad - however, I’m not sure I could get
used to running with nothing but a hospital gown and a pair of trainers on! At the follow
up appointment I ended up spending the whole day there, just
waiting to be seen! We discussed all the results with the doctor -
and he said everything is fine and he’ll see me in about 6 months
About a week later I started my new job, working for the local
council. Sweeeeeeet. It’s not too bad, 9 till 5 job with the
pleasure of doing a NVQ at the same time. But now I have a job, it
seems that I just don’t have time for anything!
I can’t believe it’s almost the end of
the month, it’s gone so fast! I can’t wait till next week; I’m
going to Devon for the week with work for outdoor pursuits, it will
be a great opportunity to meet all the other apprentices and learn
new skills. There’ll also be plenty of photos!
I even got braces this month (bright
pink!) and I got my provisional! I can’t wait to start driving,
better watch out for me on the roads!
So I’m glad to say it’s been a busy,
tiring but interesting month. Roll on next month and the rest to
Hi, I’m Rosa. I have just
left secondary school. I studied: English, Mathss, Biology,
Chemistry, Physics, ICT, History, French and Sociology.
I have Long QT Syndrome, which is a quite
rare inherited heart condition where the
electrical charging and discharging of the heartbeat takes longer
than normal. This can make my heart at risk of getting
a very fast abnormal heart rhythm that can cause sudden loss of
consciousness and even sudden death.
I am going through the
transitional period at the moment- where I am
moving from paediatric clinic to adult clinic. I do not have a
hospital to go to and I’m stuck in limbo!
So, I’ve decided to write this Blog to
not only tell people what the transitional period is like, but to
tell people what day-to-day life is like living
with a heart condition.
Do you have a heart condition that affects
Would you like talking about your
experiences to help others in a similair situation?
Interested in posting your own blog on Y